Last weekend I attended the UK’s National Conference of Cancer Self-Help Groups (NCCSHG). Just like most of the groups themselves, this is organised on a volunteer basis. But the quality of the conference was of a fabulously high standard. There was camaraderie, understanding, passion of the volunteers, and a range of fascinating and entertaining speakers. I didn’t get to take part in any of the workshops (because I was giving one), but the range on offer ran from card making to the future of support groups.
It was my first time at the conference, and I thought it would be good to report my impressions. Over the next few weeks, in addition to other items of interest, I’m going to be revisiting the conference to share with you some of what I learned. There were definitely highs and lows, especially as one of the long-established volunteers sadly died over the course of the weekend. But the spirit of the members – most of whom have experienced cancer themselves, or supported a family member, and now give up their time to help others – was what particularly shone through for me. It was a joy to be there, from the good humour and friendliness of the delegates through to the fabulous buffet lunches provided at Manchester University’s Fallowfield Campus.
So I’d like to start with just thinking a little about Cancer Self-Help or Support Groups. Why are they important? What do people gain from them? I think the first thing is probably that sense that someone understands what you are going through. Also, the best groups are very positive – one lady has told me the group she is part of call themselves a Cancer Survivors Wellness Group, which is a great focus. Another aspect I believe is time to talk. Sadly on a visit to a doctor there is likely to be very little time for reality to sink in enough to even think of questions, let alone ask them and have them answered. Some people may access this support through a MacMillan nurse or a Cancer Liason Nurse – but those who have experienced cancer themselves or through a family member also have a wealth of wisdom and empathy to offer. I would love to hear about your experience of support groups. What do you or have you got out of attending (or volunteering)? Are there enough groups? Are they easy to find? Please post in the comments and join the discussion.
Well, those are my first impressions. I’ll share more later, and look forward to hearing from you either in the comments or by sending me a message.
Anne x
